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Research Participation Opportunities

Participate in Research

Looking to help advance the future of autism research? Studies at the cutting edge of improving the quality of life for autistic people are happening right now — and these studies would be nowhere without participants.

Here, you will find opportunities to get involved in research studies. Browse through the opportunities to find the ones that are looking for someone like you or your child.

Research studies funded by OAR’s Applied Research Competition or Graduate Research Grant Competition will be denoted with a sun icon

Please note that OAR staff is not directly involved with any of the studies; for any questions, please contact the researchers directly.

Are you a researcher seeking participants for your study? Click here to let us know.

The Your View Study

The Your View Study

Researcher

Carolyn McCormick

Institution

Purdue University

Who can participate

Families with children between 2-5 years of age who: are on the autism spectrum, have Down Syndrome, or are typically developing.

Location

Remote; participation is all completed at home and through online questionnaires.

Description

Families will receive a kit mailed to their home with head-cameras, headbands, and instructions. Parents and their children will wear the head-cameras and record their daily activities for up to 4 hours across 1 week. Parents will also be asked to fill out questionnaires online. Families will be compensated with a $60 amazon gift card for their time. Are you interested or have questions? Contact us at maclab@purdue.edu.

Contact

Contact Measurement, Autism and Child Development Lab (MAC Lab) at maclab@purdue.edu.

Deadline

December 1, 2022

Autism: Human-Animal Interaction

Autism and Human-Animal Interaction: A Mixed Method Approach to Emotion Regulation

Researcher

Harrison Chapman, Alan Stewart, Ph.D.

Institution

University of Georgia

Who can participate

Autistic adults, 18+, and those who can provide legal consent

Location

Remotely – https://ugeorgia.ca1.qualtrics.com/jfe/form/SV_7P5hgU0PplWF4Ue

Description

Hello,

My name is Harrison Chapman, a doctoral candidate in Counseling Psychology at the University of Georgia. I am inviting you to take part in a research study for a dissertation, which will explore different ways autistic adults adjust their emotions. In the study, the researcher aims to center the experiences of the autism community research on emotion regulation by examining various ways autistic adults adapt their emotions, the impact masking has on adjusting emotions, and the way animals may provide emotional support. You do not have to have a pet to participate.

Eligibility includes:

  • Any autistic adult who is 18+ years or older with or without a professional diagnosis
  • Ability to provide legal consent

The survey takes approximately 30 minutes to complete and consists of:

  • Informed consent
  • Closed-ended questions
  • Three open-ended response questions
  • Demographics

Your participation in the study will aid in understanding the ways the adult autistic community regulate emotions and provide more information about the human-animal bond. The IRB approved survey (PROJECT00006156). Additionally, if you provide an email address, you will be entered in a random drawing for 1 of 5 $25.00 Amazon gift cards. You do not have to enter the drawing to complete the survey. You may enter for the drawing without participating in the research

Click either a link on the flyer or the link below if you would like to participate.

Link to survey:
https://ugeorgia.ca1.qualtrics.com/jfe/form/SV_7P5hgU0PplWF4Ue

Please feel free to share this email and the attached flyer with other who may be interested in participating.

Contact

Harrison E. Chapman, M.Ed., harrison.chapman25@uga.edu

Alan Stewart, aeswx@uga.edu

Deadline

December 30, 2022

How Do YOU Flow?

How Do YOU Flow?

Researcher

Keely Lundy

Institution

University of Utah

Who can participate

Youth: Lives in the USA; is 17 years of age or younger; have an autism diagnosis with no co-occurring intellectual or motor impairments; experiences regular periods (for at least one year but no more than 4 years); and can read or has access to technology to read English written content.

Location

Remotely – phone, video conference, internet, etc.

Description

We are seeking young autistic menstruators and their caregivers to participate in a study titled ‘Assessing Menstrual Product Preferences of Young Autistic Menstruators.’ The purpose of this research is to determine the impact of various product features on a caregiver’s decision when purchasing menstrual hygiene materials for their autistic child and which menstrual products are most preferred by young autistic menstruators. The research’s results intend to make periods less anxiety-provoking for autistic youth and their caregivers; it may also provide helpful information to menstrual product companies to improve their products and offer better support to all menstruators. If interested and meet the above criteria, please fill out this form: https://forms.gle/XPgbHn2sfPhhb1pH9.

 

Contact

Contact Keely Lundy, Keely.Lundy@utah.edu.

Deadline

March 31, 2023

Dysfunction of Sensory Inhibition in Autism

Dysfunction of Sensory Inhibition in Autism

Researcher

Kaala Harrilal

Institution

Kennedy Krieger Institute

Who can participate

Children with or without Autism, ages 6-12

Location

Baltimore, MD

Description

We are recruiting children to participate in an MRI research study to learn if there are differences between the brain’s structure and its function in children with and without Autism Spectrum Disorder (ASD).

Who: Girls and boys with or with ASD

What: Eligibility screening via parent phone interview, 2 days of computer games, paper & pencil tasks, and a Magnetic Resonance Imaging (MRI) scan of the brain.

Free IQ testing and report, and a picture of their brain!

Where: Kennedy Krieger Institute, Baltimore, MD

Benefit: There is no significant risk or direct medical benefit for participating in this study.

Compensation: $50 per day (can earn up to $100)

Contact

Natalie Alessi: CNIR@kennedykrieger.org

Deadline

June 1, 2023

Autistic/Non-Autistic parent-child relationships

Autistic Mother & Non-Autistic Daughter Relationships During Adolescence

Researcher

Natalie Libster, Connie Kasari, Robin Harwood, Karen Meacham

Institution

University of California, Los Angeles

Who can participate

Autistic mothers (formal or self-diagnosis) and their non-autistic daughters (no formal or self-diagnosis) between the ages of 13 and 19

Location

Los Angeles, CA

Description

Researchers at the University of California, Los Angeles are conducting a study exploring how autistic mothers and their non-autistic adolescent daughters describe strengths, challenges, and communication in their parent-child relationships. Co-investigators of this study, who are both autistic mothers, helped develop the study topic and protocol. The research team will collaboratively decide how to present the research findings to prioritize the goals of the autistic community.

This study may be a good fit for you and your daughter if:

  • You have a formal or self-diagnosis of Autism Spectrum Disorder (ASD)
  • Your daughter is between the ages of 13 and 19 and does not have a formal or self-diagnosis of ASD
  • You and your daughter would like to share your perspectives of your mother-daughter relationship

What does participation involve?

  • You will each participate in a one-on- one interview (up to 90 minutes)
  • You will both have the option to conduct the interview in-person, over Zoom, or over a text-based application
  • You will each receive a $50 Amazon gift card to thank you for your time
Contact

Natalie Libster, NLibster@mednet.ucla.edu

Deadline

June 1, 2023

Maternal Risk Factors - Autism

Maternal Risk Factors for Autism Spectrum Disorders: A Case-Control Approach

Researcher

Michael Haniff

Institution

Walden University

Who can participate

Mothers of autistic children, ages 3-12

Location

www.autismrisksurvey.com

Description

New research suggests that about 1 in 8 children may be diagnosed with an autism spectrum disorder (ASD) in the United States. This could be due to several reasons which remain unknown. This study invites mothers who have given birth to children in the United States to share their experiences with diet and supplementation during pregnancy.

Findings from this study can be used to help identify risk factors for ASD risk.

About the study:

One 15–20-minute survey for each child you’ve given birth to
To protect your privacy, the published study would not use any identifying information

Volunteers must meet these requirements:

  • Mothers 18 years or older with a child aged 3-12 years who has an official ASD diagnosis from a clinician
  • Mothers 18 years or older of children aged 3-12 years who do not have an ASD diagnosis so comparisons can be made between groups

This survey is part of the doctoral study for Michael M. Haniff, a Ph.D. student at Walden University.

Study Purpose:

The purpose of this study is to understand the role of a mother’s diet, social standing, and supplementation with folate or folic acid may have on her child’s future development of autism. Comparisons will be made between mothers of children who have a child with an official ASD diagnosis from a clinician to mothers of children without an ASD diagnosis.

Procedures:

This study will involve you completing the following steps:

  • An online survey that will take approximately 20 minutes

Here are some sample questions:

  • How many people are currently living in your household, including yourself?
  • Do you drink caffeinated beverages daily (such as coffee, tea, colas)?
  • Did you use any folate/folic acid supplements during pregnancy?
  • What percentage of your diet consisted of meat or meat products?
  • Was your pregnancy planned?
  • Does your child have a confirmed ASD diagnosis by a physician?
Contact

Michael Haniff: michael.haniff@waldenu.edu

Deadline

June 15, 2023

Sensory-Friendly Restaurants

Designing Inclusive Service for a Sensory-Friendly Restaurant

Researchers

Kwangsoo Park, Jooyeon Ha

Institution

North Dakota State University

Who can participate

Parents/Families of children with ASD

Location

Online interview

Description

We Need Online Interview Participants!

Hello Parents/Families of children with Autism Spectrum Disorder,

We are seeking interview participants for the research titled ‘Designing Inclusive Service for an Autism-Friendly Restaurant’.
The purpose of this research is to learn the dining experiences of parents/families of children with Autism Spectrum Disorder and examine the constraints of their dining-out intention. The result of this research will be used to develop restaurant service guidelines to create autism-friendly restaurants.

The interview will be conducted online using the Zoom platform. The duration will be about 30-45 minutes.
The participant must be 18 years of age or older. Upon completion of the interview, the participant will receive monetary compensation ($100).

Contact

Kwangsoo Park: kwangsoo.park@ndsu.edu

Jooyeon Ha: jooyeon.ha@sjsu.edu.

Deadline

June 30, 2023

Help-Seeking Experiences of Autism Caregivers

Understanding the Help-Seeking Experiences of Asian American Caregivers of Children with Autism: A Qualitative Study

Researcher

Amani Khalil, M.S. Ed.

Institution

Purdue University

Who can participate

Primary caregivers of a child ( age 3-17) with ASD. Caregivers must be over the age of 18 and 1) identify as Asian or Asian American, 2) speak fluent English, and 3) reside in the United States

Location

Remotely – bit.ly/3quutu3

Description

We are seeking interview participants for the research titled “Understanding the Help-Seeking Experiences of Asian American Caregivers of Children with Autism: A Qualitative Study”

The purpose of this research study is to learn about the healthcare barriers Asian and Asian American caregivers/ parents experience in accessing an autism diagnosis and autism treatment services specially within the U.S. healthcare system. Our results will aim to address how we can create culturally competent autism services and ultimately how we can close the delayed autism diagnosis and intervention services that Asian American children with autism often experience.

If you are a primary Asian American caregiver caring for a child diagnosed with Autism age (3-17) please consider participating in an online interview on your experiences navigating Autism treatment and supports for your child. If selected for an interview you will be compensated with a $25 Amazon gift card upon completion of an online interview.

To qualify for the study, you must:

  • Be a primary caregiver of a child diagnosed with Autism ages (3-17)
  • Identify as an Asian American
  • Be 18 years or older
  • Speak fluent English
  • Currently reside in the U.S.

If you are interested in the study, please fill out a brief interest and demographic survey below.

https://bit.ly/3quutu3

Contact

If you have any questions, please feel free to reach out to PRFLab@Purdue.edu,

Amani Khalil, M.S. Ed., KhalilA@Purdue.edu, or

Xiang Zhou, xiangzhou@purdue.edu

Deadline

August 11, 2024

Flexible Thinking Study

Flexible Thinking Study

Researcher

Dr. Erin Kang

Institution

Montclair State University

Who can participate

typically-developing children or children diagnosed or with suspected autism, aged 6-17 years old

Location

Montclair, New Jersey, USA

Description

Researchers at Montclair State University are looking for families with children and adolescents 6-17 years old that are typically developing or have/are suspected to have autism spectrum disorder to participate in an in-person study on how children switch their thinking and attention between tasks. We hope to better understand flexible thinking patterns and how they relate to social and emotional development. Participating families will receive a $50.00 gift card for completing this study.

Contact

Montclair State University Autism and Neurodevelopment Lab at 973-655-3615 or email at erinkanglab@montclair.edu.

Deadline

August 31, 2024

Recruit Participants

If you are seeking participants for a study, you are invited to submit the form below.

Please fill out the following form to share your research participant opportunity. Once your submission is received, OAR will get in touch with you about listing your study on this page.

In order to be considered, your study must:

  • Focus on quality-of-life research for autistic people.
  • Be approved by the IRB (or an equivalent oversight body for studies conducted outside of the USA).

If you submit the form but do not see a confirmation message appear on the screen, please contact us to confirm that the form went through.

If you do not receive an email response within a few days of submitting your request, please contact us to confirm that we received your form.