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Research Participation Opportunities

Participate in Research

Looking to help advance the future of autism research? Studies at the cutting edge of improving the quality of life for autistic people are happening right now — and these studies would be nowhere without participants.

Here, you will find opportunities to get involved in research studies. Browse through the opportunities to find the ones that are looking for someone like you or your child.

Research studies funded by OAR’s Applied Research Competition or Graduate Research Grant Competition will be denoted with a sun icon

Please note that OAR staff is not directly involved with any of the studies; for any questions, please contact the researchers directly.

Are you a researcher seeking participants for your study? Click here to let us know.

Building Consensus Around Adult Autism Diagnostic Assessment

Building Consensus Around Adult Autism Diagnostic Assessment

Researcher

Dr. Connor Kerns & Charlotte Stewardson

Institution

University of British Columbia

Who can participate

Autistic adults, ages 18+, diagnosed within the last 5 years

Location

Remotely

Description

The Anxiety Stress and Autism Program (ASAP Lab), directed by Dr. Connor Kerns, is currently recruiting autistic adults for an upcoming study!The goal of this study is to establish a consensus between both autistic adults and expert clinicians around ideal assessment practices for diagnosing autistic adults. Through this effort, we hope to contribute to the development of more collaborative, effective, and inclusive diagnostic practices for autistic adults.Brief Study Details:We are seeking input from autistic individuals who have received an autism diagnosis in adulthood (18+) within the last 5 years.Eligible participants will complete three online surveys spread over several months, with each survey taking approximately 45 minutes to one hour.Participants will receive $20 CAD per survey completed via an Amazon Gift Card.If you are interested in learning more about the study and/or would like to complete a brief (3-4 minute) study eligibility screener, please click on the link.

Contact

If you have any questions, please contact Charlotte Stewardson at:c.stewardson@psych.ubc.ca.

Deadline

February 29, 2024

Brain Training Game for Learning, Health Literacies, and Self-Formation

Designing a Brain Training Game for Learning, Health Literacies, and Self-Formation Using A Neurodiversity Design Approach to Learning Experience Design

Researcher

Dr. Jonathon Cohen & Jamie Bernhardt

Institution

Georgia State University

Who can participate

Adults aged 18 and up, with or without a diagnosis of a neurodevelopmental condition like autism or ADHD

Location

Remotely

Description

We invite you to take part in a research study through Georgia State University.The purpose of this study is for the researcher to make a brain training game based on participants’ expressed interests.The study focuses on the learning participants want to do with a brain training game. The researcher wants to design the desired learning features to help participants learn.Your role in the study will last no longer than 8 total hours over the span of 2-3 months.All individuals aged 18 years and up, including persons with or without a neuro-developmental condition like Autism or ADHD, are welcomed to participate.This recruitment flier provides more details about study activities.To apply to be a participant, you can visit the following survey link:https://lnkd.in/exTbsaVi

Contact

If you have any questions, please contact Jamie Bernhardt at:jbernhardt2@student.gsu.edu.

Deadline

February 29, 2024

Sex Differences in the Diagnosis of ASD

Sex Differences in the Diagnosis of Austin Spectrum Disorders

Researcher

Dr. Philip Esposito & Claire Thompson

Institution

Texas Christian University

Who can participate

Parents/caregivers of autistic children ages 5-11

Location

Remotely

Description

We are conducting a research study on the effectiveness of screening tools in detecting autism spectrum disorders in children of both sexes. We are seeking parents or caregivers of children between the ages of five and eleven whose children have received a formal ADOS score. Participation will take no more than 10 minutes and will involve filling out a short survey. Participation is completely voluntary, and data will be deidentified and stored on locked computers at TCU.If you are interested, please click the link above to access the survey.There are no known risks involved in this research, and you may opt out of the survey at any time.If you have any questions, please do not hesitate to contact Dr. Phil Esposito at p.esposito@tcu.edu or (817) 257-6866.

Contact

If you have any questions, please do not hesitate to contact Dr. Phil Esposito at p.esposito@tcu.edu or (817) 257-6866.

Deadline

March 1, 2024

Intimate Partner Relationship Education

Intimate Partner Relationship Education Among Adults With Autism Spectrum Disorder

Researcher

Meghan Driscoll & Kyle Karren

Institution

New York Institute of Technology (NYIT)

Who can participate

Diagnosis of ASD (self-disclosed by the individual), 18 years of age or older, and can read, understand, and participate in a survey independently.

Location

Remotely

Description

Hello everyone! My name is Meghan Driscoll and I am an occupational therapy doctoral student at New York Institute of Technology. I am conducting research to better understand the views, experiences, and preferences adults with autism have when it comes to receiving education on intimate partner relationships. I’ve created a Qualtrics survey intended to give ASD adults an opportunity to provide their feedback on intimate partner relationship education. The survey is anonymous and should take about 10-15 minutes to complete. The deadline to complete the survey is March 20, 2024.

Who can take part in the survey?
– Diagnosis of ASD (self-disclosed by the individual)
– 18 years of age or older
– Able to read, understand, and participate in a survey independently

How the data will be used: Data collected from the survey will be analyzed. Findings from the data will be discussed in a typed report and presented on New York Institute of Technology Campus.

Benefits/risks of study: The benefit of this research is that there will be increased knowledge of how to approach intimate partner relationship education for ASD adults, which can lead to more educational resources tailored to the needs of this population. One risk for participating in this study is that participants may feel uncomfortable, embarrassed, stressed, and/or anxious when answering survey questions. To decrease this risk, individuals may choose to participate or not in this survey and do not have to answer every question if they do not want to.

Data collected is fully anonymous.

Survey link: https://nyit.co1.qualtrics.com/jfe/form/SV_bpidJ8jPY2pMjA2

This research has been approved by New York Institute of Technology Institutional Review Board.

Contact

For any questions or concerns, please contact Meghan Driscoll at mdrisc02@nyit.edu.

Deadline

March 20, 2024

Virtual Group Acceptance and Commitment Therapy Format

Exploring Virtual Group Acceptance and Commitment Therapy Format on Participation of Parents of Children with Autism

Researcher

Christina Simmons, Ph.D., BCBA-D & Abigail Moretti

Institution

Rowan University

Who can participate

Parents of autistic children, ages 5-12, with co-occurring challenging behavior

Location

Remote via WebEx

Description

Are you looking to improve your own well-being alongside other parents of children with autism? Then this study may be for you!

Researchers at Rowan University are conducting a study examining how parents of children with autism prefer to participate in virtual parental well-being groups. Parents will be randomized into either a 6-hr workshop group, a 3-week group with 2-hr sessions once per week, or a 6-week group with 1-hr sessions once per week. The groups will target parental well-being, be entirely virtual, and will be scheduled based on participant availability. After the completion of the virtual group session(s), parents will receive two sessions of virtual parent training to learn skills to address their child’s challenging behavior.

Parents can participate if:– They are at least 18 years old– They have a child age 5-12 with autism and co-occurring challenging behavior– They speak English– They have access to a device with audio and video capabilities.– They can identify another adult to assist with participation

Contact

If you are interested in participating, please email the co-facilitator, Abigail Moretti, at morett94@rowan.edu to set up a phone screening.

Deadline

March 31, 2024

Dyadic Coping and Couple Satisfaction for Parents with Autistic Children

The Relationship Between Dyadic Coping and Couple Satisfaction for Parents with Autistic Children

Researcher

Julia Kolodny

Institution

Hofstra University

Who can participate

Participants must be raising a child with autism, be married or in a committed relationship, be living with their autistic child and partner, have a partner that is a parent or parental figure to your child, and be 18+

Location

Remotely

Description

At Hofstra’s Diagnostic and Research Institute for Autism Spectrum Disorders (ASD), we are committed to advancing knowledge and understanding in families parenting autistic children. Your participation in this survey will play a crucial role in helping us achieve this goal.Survey Details:Survey Title: The Relationship Between Dyadic Coping and Couple Satisfaction for Parents with Autistic ChildrenSurvey Duration: Approximately 10 minutesSurvey Link: https://tinyurl.com/hofstraasdWhy Should You Participate? By taking part in our survey, you will:Chance to Win: As a token of our appreciation, you will be entered into a draw to win a $50 Amazon gift card.Contribute to Research: Your input will contribute to the body of knowledge in autism research.Make a Difference: Your opinions and experiences matter and can help shape future decisions and policies.To participate in the survey, please click on the following link: https://tinyurl.com/hofstraasd

Contact

If you have any questions or require further information, please do not hesitate to reach out to us at hofstraautismresearch@gmail.com.

Deadline

March 31, 2024

New Measure of Early Social Communication

Initial Validation of a New Measure of Early Social Communication

Researcher

Manisha Khatiwada

Institution

The Ohio State University

Who can participate

Autistic children, ages 2-6

Location

Remote and In-Person (Columbus, Ohio)

Description

The Ohio State University is conducting a research study to help improve a new measure of social communication for young children with autism.

You May be Eligible If:
· You child has a diagnosis of autism spectrum disorder
· Your child is age 2-6 years
· You can complete this research study at our office in Columbus, OH or at your home if it is within 25 miles of Ohio State University

What is Involved?
• Child to participate in several play-based assessments of autism-related behaviors and an assessment of cognitive skills.
• A parent or guardian to fill out some information about the child, including information about child and family demographics, social and communication, daily living skills, and autism-related behaviors.
• We will also ask you and your child to participate in a brief play session together.

What will I receive if I participate?
· Parents/caregivers will receive a $50 Amazon.com gift card
· Children will receive a small toy for their participation
· Parking costs will be covered by the study

Contact

If you have any questions or are interested, please email Manisha Khatiwada at manisha.khatiwada@osumc.edu.

Deadline

April 20, 2024

Draft Transition Pragmatics Interview (TPI)

Pilot and Try-Out of the Draft Transition Pragmatics Interview (TPI)

Researchers

Gerard (Trace) Poll, Janis Petru, and Brooke Harmon

Institution

Miami University

Who can participate

Adolescents and adults with autism age 14-21 years, typical hearing, English as dominant language, and communicates in spoken sentences.

Location

Remotely

Description

Volunteers are needed for a study focused on developing a new social communication assessment. The study is conducted by appointment over Zoom. Participants are compensated $30 for the 1 hour study. Participants are asked to respond to interview questions. The project aims to improve services for individuals making the transition from high school to jobs, independent living, or post-secondary education. Interested volunteers are encouraged to complete the web form.

Contact

If you have any questions or would like to participate in the research, please contact pollgh@miamioh.edu. We welcome questions from potential participants!

Deadline

April 30, 2024

Parent-Child Perceptions of Anxiety Symptoms

Emotional and Behavioral Functioning in Children with Autism Spectrum Disorder

Researchers

Tammy Barry, Ph.D & Sarah Boland, M.S.

Institution

Washington State University

Who can participate

Parents over age 18 and autistic children ages 10-17

Location

Remotely

Description

Dear Families, Caregivers, and Professionals,

I am a graduate student at Washington State University in the psychology department. For my PhD program, I am conducting a study investigating the perceptions of emotional functioning of children with ASD and factors that may influence those perceptions. This research has been approved by the Washington State University Institutional Review Board. I am inviting caregivers and their children to participate.

You and your child may participate in the study if your child is between the ages of 10 and 17, has a formal diagnosis of autism, you are both fluent in English, and if you are the legal guardian of your child. Before participating in the study, you will need to fill out a consent form online and your child will need to complete an assent form online.

Participation in this research includes completing an online survey that will take about one hour to one and a half hours to complete. Your child will be asked to complete a Zoom-based assessment with the researcher using a standardized brief measurement of intelligence. You and your child will also be asked to complete a series of questionnaires assessing internalizing symptoms (e.g., depressive symptoms, anxiety) and other behavioral difficulties.

You and your child may be asked to partake in two Zoom-based joint psychoeducational sessions facilitated by a trained clinician. Three to four weeks later, you and your child will complete the questionnaires again. The study should take about 2-4 hours to complete, across 2-4 zoom sessions (depending on the results of your initial study visit and randomly assigned condition). After study completion, your family will be compensated with a $50 Amazon gift card. Gift cards will be delivered either electronically via your email or physically mailed to your home, depending on your preference.

Contact

If you have any questions or would like to participate in the research, I can be reached at sarah.boland@wsu.edu.

Deadline

May 1, 2024

COSIMO (Cognition of Social Interaction in Movies)

COSIMO (Cognition of Social Interaction in Movies)

Researcher

Tamara Hibbert, Rebecca Johannessen, MSc, Marcel Eicher, MSc, Lesley Ramseier,BSc, and Dr. Hennric Jokeit

Institution

University of Zurich

Who can participate

Autistic adults, ages 16+

Location

Remotely

Description

Research has described difficulties in recognising other people’s emotions in people with autism. Until now, however, there are few efficient and reliable methods for identifying these difficulties in adulthood.Together with the University of Zurich, the Swiss Epilepsy Centre is developing the COSIMO online test to fill this gap.Help us to further develop this test and advance our knowledge of emotion recognition in autistic adults.

Your task: Identify the emotions portrayed in short film sequences and still images of the eyes.
Test duration: 10-15 minutes
Benefit: A small donation will be made to the Swiss Autism Society for each participation.

To take part, click on the link above.

Contact

Please contact Tamara Hibbert at tamarajulia.hibbert@uzh.ch with any questions.

Deadline

May 1, 2024

Parental Accommodation in ASD

Parental Accommodation in Autism Spectrum Disorder

Researchers

Molly Ludlow & Melanie Wadkins

Institution

Ferkauf Graduate School of Psychology – Yeshiva University

Who can participate

Parents of children with Autism between the ages of 5 and 18

Location

Remotely 

Description

The Ferakuf Anxiety Lab is conducting research on parental accommodation in ASD. If you or someone you know has a child with ASD between the ages of 5 and 18, please consider participating in this study. A $2 donation to Autism Speaks will be made in honor of your participation and you will be providing the scientific community with valuable information about ASD. This research project was reviewed and received an exempt determination by WCG IRB. Thanks in advance for your time and consideration!

Contact

If you have any questions, please contact Molly Ludlow
at mludlow@mail.yu.edu.

Deadline

May 24, 2024

Stress and Mental Health in Parents

Stress and Mental Health in Parents of Autistic and Gender Diverse Adolescents

Researchers

Kris Nelson

Institution

California State University San Marcos

Who can participate

Parents/Caregivers of Adolescents (ages 11-18)

Location

Remotely 

Description

Recruiting parents of adolescents (ages 11-18) to participate in an online survey regarding stress and mental health! Adolescents may be autistic, gender diverse, both, or neither. Potential participants are invited to complete a 5-minute online survey to determine eligibility to participate in a 30–45-minute online survey about parent stress and mental health. Eligible participants who complete the survey will receive a $15 Amazon electronic gift card.

Contact

If you have any questions, please contact sparcclab@csusm.edu.

Deadline

May 25, 2024

Biomarkers Panel to Improve Autism Diagnostic Processes

Validating a Biomarker Panel to Improve Autism Diagnostic Processes

Researcher

Merle May

Institution

Healios

Who can participate

UK and US parents and children aged 5 to 11; eligibility will be assessed via a short screening survey (see links below)

Location

Remotely. For the US, use this link to participate. For the UK, use this link to participate.

Description

Could you spare a few minutes to help us improve autism services for children across the globe?

Healios is a company with a mission to improve the accessibility of mental health and neurodevelopmental services for those who need them. We’re looking for parents and children aged 5 to 11 to take part in a simple online study that could pioneer improvements in the autism diagnostic process. The study is fully remote and only requires a smartphone and internet connection. By taking part, you’ll be helping to improve the lives of millions of children and young people worldwide. Over five million US citizens are autistic, and some wait up to four years to receive a diagnosis. This delay can have severe repercussions on their health and quality of life. Our research will help to improve the process.

How it works

Step one: Complete a short three-minute survey
Step two: Our team will be in touch if you can take part
Step three: If eligible, you will be invited to complete the research, which will involve the young person completing fun tasks on a mobile app and answering a few questions about your child
Step four: Once completed, you will be paid at a rate of $20 per hour for your time as a thank you

Contact

If you are interested in this, please do not hesitate to contact us. We would be more than happy to provide further information and discuss this further. For more information about who we are, please contact us here.

Deadline

May 31, 2024

Autism-Specialized College Support Programs

Autism-Specialized College Support Programs: A Grounded Theory Approach to College Transition Services and Potential Retention Impacts

Researcher

Gary Burdette

Institution

University of Saint Mary

Who can participate

Autism-specialized college support program (ASP) directors, participating college students identifying as autistic, parents/guardians of participating students

Location

Remotely

Description

Collaborators Needed for Spring 2024 Research StudyMy name is Gary Burdette, and I’m a doctoral candidate in the Ed.D. in Leadership program, Curriculum and Instruction concentration, at the University of Saint Mary (Kansas). I’m contacting autism-specialized college support program (ASP) directors, students, and immediate families to collaborate on a research project regarding ASP transition services, supports, and potential connections to first to second-year retention. There are two primary response options: 1) a one-on-one Zoom interview (or a panel discussion if feasible) or 2) an online questionnaire based on the semi-structured questions designed for the interviews. If you choose to interview, you may turn the camera on or off and respond verbally or by typing in the chat box. For both the interview and questionnaire, you may wish to leave your contact information to receive and assist in validating the data near the study’s conclusion, but it isn’t required.

Contact

Please contact Gary Burdette gary.burdette@my.stmary.edu with any questions.

Deadline

June 1, 2024

Discrimination and Disability Acceptance

Discrimination and Disability Acceptance as Predictors of Autistic Adults’ Job Satisfaction

Researcher

Barbara D’Entremont & Hala Alloubani

Institution

University of New Brunswick

Who can participate

Autistic adults, age 21 and up, who are employed or who have been employed in the past.

Location

Remotely

Description

Researchers at the University of New Brunswick in Fredericton, Canada are interested in your job experiences and job satisfaction. We are interested in all types of jobs including sheltered workshops, supported employment, and competitive employment. To participate you must have autism (autism, Asperger’s, PDD-NOS), be working or have worked in the past (sheltered, supported, or competitive), and be at least 21 years of age. For more information go to https://unbfpsyc.ca1.qualtrics.com/jfe/form/SV_cItXyN7ComZSmYm or contact the investigator at bdentrem@unb.ca. Visiting the website does not obligate you to participate. This study is being conducted by Dr. Barbara D’Entremont bdentrem@unb.ca. This project is on file with the Research Ethics Board, University of New Brunswick (REB # 2023-177).

Contact

Please contact Barbara D’Entremont at bdentrem@unb.ca with any questions.

Deadline

June 30, 2024

Autistic Adolescents' Perspectives on Behavioral Interventions

Autistic Adolescents’ Perspectives on Behavioral Interventions

Researcher

Kaitlynn Penner & Mian Wang

Institution

University of California Santa Barbara

Who can participate

English -speaking Autistic adolescents, ages 13-17

Location

Remotely and in-person

Description

Often, intervention and education for autistic children is designed and implemented without any input from autistic individuals themselves. This is why researchers in the Department of Education at UC Santa Barbara are recruiting autistic adolescents (ages 13-17) to participate in a study in which they will be asked to give feedback on different aspects of common intervention programs for autistic children. The study consists of an interview that will take approximately 60 minutes to complete. The interview includes questions about common behavioral intervention goals, practices, and strategies. Participants will be asked to provide their opinions about these topics. Participants can choose to stop participating at any point during the study.

Potential participants must be autistic (formal diagnosis or self-identification) and be between the ages of 13 and 17.

Contact

Please contact Kaitlynn Penner at kpenner@ucsb.edu with any questions.

Deadline

June 30, 2024

Aggression and Burnout Effects on Direct Care Professionals

Aggression and Burnout Effects on Direct Care Professionals Providing Services for ASD and ID Populations

Researcher

Geoffrey Keller

Institution

Carlow University

Who can participate

Mental Health Professionals who work with individuals with Autism Spectrum Disorder, Intellectual Disabilities, or other developmental disabilities. This includes but is not limited to registered nurses, nurse pratitioners, behavior specialist, BCBA’s, behavioral health technicians/workers, milieu therapists, psychiatrists, psychologists, counselors, home health aides, etc.

Location

Remotely

Description

Why is this research being done?
We are examining aggression as it relates to burnout in psychiatric hospital employees.   Burnout can be defined as “the end in coping with chronic stress” (Jennett, Harris Mesibov 2003) and is particularly relevant in high intensity high energy environments. Specifically, we are interested in collecting data from mental health professionals who work on specialized care units designed for individuals with Intellectual Disability (ID) and Autism Spectrum Disorders (ASD). We collect data through a brief survey that takes between 5 and 10 minutes to complete.

Who is being asked to take part in this research study?
All staff members who work directly with individuals with ASD or ID and engage in patient care, which includes but is not limited to Behavioral Support Staff, Psychiatric Assistants, Student Behavioral Assistants, Safety Specialists, Social Workers, Counselors and Psychologists, and Nurses.

What procedures will be performed for research purposes?
If you decide to take part in this research study, you will participate in a brief multiple choice survey that should take roughly 5-10 minutes to complete.

What are the possible risks, side effects, and discomforts of this research study?
This is a minimal risk study with several risks identified. Some survey questions ask about experiences with violence and aggression, which may cause participants to experience stress or negative emotions. Additionally, there is the possibility that participants may experience boredom as they may not find the survey content interesting.

What are possible benefits from taking part in this study?
You have the option of being entered into a raffle where every 10th participant (a 1 in 10 chance) will be emailed an online gift card to amazon worth $25.

You will likely receive no other direct benefits from participating in this study. The only potential benefit may be feelings of satisfaction for having helped and contributed to academic research.

Who will know about my participation in this research study?
Any information about you obtained from this research will be kept as confidential (private) as possible.  All records related to your involvement in this research study will be stored in a locked file cabinet.  You will not be identified by name in any publications.

Is my participation in this research study voluntary?
Your participation in this research study is completely voluntary.  Your decision to consent or not consent to participate in this research study will have no effect on your current or future relationship with Carlow University or this researcher.

If you are interested in the study, please click the link below to be taken to our survey.
Contact

If you have any questions, please feel free to reach out to Geoffrey Keller via email.

Deadline

July 5, 2024

Home-based Study of Sleep in ASD

Home-based Study of Sleep in ASD

Researcher

Dara Manoach, Ph.D. & Lindsey Woodham

Institution

Massachusetts General Hospital

Who can participate

Autistic children/teens, aged 12-18, without a diagnosed sleep disorder (except insomnia)

Location

Remotely

Description

We are seeking participants for a research project titled “Home-based study of sleep in ASD.” We want to measure differences in brain rhythms in children/teens with and without Autism Spectrum Disorder during overnight sleep at home using a wearable sleep headband device. Measuring sleep rhythms at home allows us to study more people over longer periods of time to learn more about sleep, which may help us develop treatments for sleep difficulties in the future.

Participants will receive up to $140 for completing all study activities.

Contact

If you have any questions, please feel free to reach out to Lindsey Woodham via email.

Deadline

7/31/2024

Help-Seeking Experiences of Autism Caregivers

Understanding the Help-Seeking Experiences of Asian American Caregivers of Children with Autism: A Qualitative Study

Researcher

Amani Khalil, M.S. Ed.

Institution

Purdue University

Who can participate

Primary caregivers of a child ( age 3-17) with ASD. Caregivers must be over the age of 18 and 1) identify as Asian or Asian American, 2) speak fluent English, and 3) reside in the United States

Location

Remotely – bit.ly/3quutu3

Description

We are seeking interview participants for the research titled “Understanding the Help-Seeking Experiences of Asian American Caregivers of Children with Autism: A Qualitative Study”

The purpose of this research study is to learn about the healthcare barriers Asian and Asian American caregivers/ parents experience in accessing an autism diagnosis and autism treatment services specially within the U.S. healthcare system. Our results will aim to address how we can create culturally competent autism services and ultimately how we can close the delayed autism diagnosis and intervention services that Asian American children with autism often experience.

If you are a primary Asian American caregiver caring for a child diagnosed with Autism age (3-17) please consider participating in an online interview on your experiences navigating Autism treatment and supports for your child. If selected for an interview you will be compensated with a $25 Amazon gift card upon completion of an online interview.

To qualify for the study, you must:

  • Be a primary caregiver of a child diagnosed with Autism ages (3-17)
  • Identify as an Asian American
  • Be 18 years or older
  • Speak fluent English
  • Currently reside in the U.S.

If you are interested in the study, please fill out a brief interest and demographic survey below.

https://bit.ly/3quutu3

Contact

If you have any questions, please feel free to reach out to PRFLab@Purdue.edu,

Amani Khalil, M.S. Ed., KhalilA@Purdue.edu, or

Xiang Zhou, xiangzhou@purdue.edu

Deadline

August 11, 2024

Monitor and Track Adverse Events in Autism Interventions

Developing a Tool to Monitor and Track Adverse Events in Psychosocial Autism Interventions

Researcher

Manisha Khatiwada

Institution

The Ohio State University

Who can participate

Participants may be autistic adults, parents/caregivers of young autistic children (under 7 years), and/or service/therapy providers for young autistic children (under 7 years) who are:

  • at least 18 years old
  • have access to a computer, laptop, or other electronic device with Zoom capabilities
  • live in the United States
Location

Remotely via Zoom

Description

Are you an autistic person, parent of a young autistic child, or service provider for autistic children? If so, you may be eligible to participate in an online Focus Group Research Study!

The Ohio State University is conducting a study to learn more about the experiences of autistic children and their families participating in early intervention and other psychosocial therapy services.

Contact

Manisha Khatiwada – khat21@osumc.edu

Deadline

August 30, 2024

Flexible Thinking Study

Flexible Thinking Study

Researcher

Dr. Erin Kang

Institution

Montclair State University

Who can participate

typically-developing children or children diagnosed or with suspected autism, aged 6-17 years old

Location

Montclair, New Jersey, USA

Description

Researchers at Montclair State University are looking for families with children and adolescents 6-17 years old that are typically developing or have/are suspected to have autism spectrum disorder to participate in an in-person study on how children switch their thinking and attention between tasks. We hope to better understand flexible thinking patterns and how they relate to social and emotional development. Participating families will receive a $50.00 gift card for completing this study.

Contact

Montclair State University Autism and Neurodevelopment Lab at 973-655-3615 or email at erinkanglab@montclair.edu.

Deadline

August 31, 2024

Cultural Aspects of Sexuality and Relationships

Cultural Aspects of Sexuality and Relationship Education Measure Development

Researcher

Xihan Yang

Institution

Tufts University

Who can participate

Autistic adults, ages 18-35

Location

Online or In Person

Description

Researchers at Tufts University are recruiting autistic adults to develop a measure to understand the cultural aspects of sexuality and relationship education (SRE) received by autistic population in the U.S. Participants will be invited to fill out an online survey, then take part in a Zoom interview lasting about 45-60 minutes. Participants will be compensated with $25 e-gift card.You will be eligible to participate in this study if you:– age 18 or older– are autistic– can communicate and read in English– able to make consent for studies individually (no legal representatives)– willing to share your previous experiences in sexuality and relationship educationIf you are interested in participating, please fill out this preliminary questionnaire:https://tufts.qualtrics.com/jfe/form/SV_2oyeHwHtHWylZEG.If you’re eligible, we’ll reach out within a week with an invitation to be interviewed.

Contact

Please feel free to get in touch if you have any questions: crehanlab@tufts.edu.

Deadline

August 31, 2024

Assessing Functional Language Development

Assessing Functional Language Development via Telehealth

Researcher

Lee Mason and Alexis Bolds

Institution

Cook Children’s Health Care System

Who can participate

Children with and without an ASD diagnosis through seven years of age.

Location

Remotely

Description

Participants needed for telehealth language research! Our telehealth-based language assessment is designed to assess four functions of CLEaR speech (https://www.checkupnewsroom.com/helping-children-with-autism-communicate-with-clear-speech/). This longitudinal research is designed to track your child’s language development over the course of 12 months. Participants will receive a detailed report of their child’s present level of functional language. Both children with autism and neurotypical peers are encouraged to participate!

Contact

If you have questions or would like to participate, contact Lee Mason at lee.mason@cookchildrens.org.

Deadline

November 14, 2024

Meanings of Autism & Work

Meanings of Autism & Work

Researcher

Jun Hwan Kim, Brandon Snel, Aashima Sarin (medical students); Jacob Krehbiel (autistic community research assistant)

Institution

Michigan State University

Who can participate

Autistic people in mid-Michigan, Kent, and Ottawa counties ages 14+; professionals and advocates in mid-Michigan, Kent, and Ottawa counties

Location

Remotely and In Person

Description

We are looking for participants to take part in a study about autism and employment. We are recruiting autistic people (with or without a diagnosis) ages 14 and older, as well as professionals and advocates who work in the area of autism and employment. All participants will have the opportunity to participate in an interview. Autistic people will also have the opportunity to take photos of work and invite a researcher to “shadow” them at their job. The lead researcher is Ariel Cascio, Ph.D., Center for Bioethics & Social Justice. To take part or ask questions, contact (616) 287-0336 or casciome@msu.edu.

Contact

If you have questions or would like to participate, contact (616) 287-0336 or casciome@msu.edu.

Deadline

March 31, 2025

Work Chat: An Interactive Virtual Workday

Work Chat: An Interactive Virtual Workday

Researcher

Matthew Smith, Connie Sung, and Shaun Eack

Institution

University of Michigan

Who can participate

Autistic Adults ages 18 and older with at least a 4th grade reading level

Location

Remotely

Description

The University of Michigan Level Up: Employment Skills Simulation Lab has partnered with the autism community since 2019 to develop a gameified computer program called Work Chat: A Virtual Workday and we are looking for help from autistic adults to help us evaluate WorkChat. Work Chat is designed to be a typical work day experience in a virtual gaming world to practice with conversations with virtual customers, coworkers, and supervisors. If you join the study, you will complete some surveys and assessments, and then you will be randomly selected to use the Work Chat program now or you will be selected to use Work Chat later.
If you are eligible, both groups can earn up to $215 for participating. Participation is completely voluntary. We have a consent form that will provide more details if you are interested.

Contact

If you you have questions or would like to participate, please the link in this ad or email our research team at: work-chat@umich.edu.

Deadline

August 29, 2025

Receptive Language in the Minimally Speaking

Receptive Language in Minimally Speaking Children and Adolescents

Researcher

Lindsay Butler

Institution

University of Connecticut

Who can participate

Autistic children and adolescents, ages 7-17 who use minimal spoken language

Location

Remotely

Description

One in four autistic individuals has minimal spoken language. Despite having minimal spoken language, research suggests that at least 25% have high language comprehension. Researchers and clinicians, however, do not have a way to directly evaluate language comprehension. In this study, we developed a remote, touchscreen response language comprehension task for individuals with minimal spoken language. This research can help clinicians and educators evaluate language comprehension to improve communication supports.The Brain & Language on the Autism Spectrum Team at UConn is currently recruiting 7-17 year old children and adolescents who use minimal spoken language. Research includes 60-110 minutes of online parent questionnaires and 40-80 minutes of remote parent-child language tasks. Compensation is up to $75. We will tailor the language tasks to your child’s special interests.

Contact

For questions, please contact blast-off@uconn.edu.

Deadline

August 30, 2025

Recruit Participants

If you are seeking participants for a study, you are invited to submit the form below.

Please fill out the following form to share your research participant opportunity. Once your submission is received, OAR will get in touch with you about listing your study on this page.

In order to be considered, your study must:

  • Focus on quality-of-life research for autistic people.
  • Be approved by the IRB (or an equivalent oversight body for studies conducted outside of the USA).

If you submit the form but do not see a confirmation message appear on the screen, please contact us to confirm that the form went through.

If you do not receive an email response within a few days of submitting your request, please contact us to confirm that we received your form.