Striving to Make Independence More Than Just a Day in July
July 01, 2016
There are few virtues more important than independence. Universally, nations and their citizens strive for independence. Teenagers seek independence from their parents. Small children tell their parents, “I do it.” Research tells us that independence is fundamental for success, boosts confidence, reduces over-reliance on others, promotes happiness, increases a sense of accomplishment, and promotes better decision-making. Independence is important to function effectively in the world.
As those who support, care for, and love individuals on the spectrum, we are often mired in day-to-day issues without enough time to address them:
We want to be helpful so, in the landslide of situations like these, we often “do for” the individual on the spectrum because of time constraints and their immediate lack of skills. Doing for is easier and keeps everyone calm.
Being helpful enables us to survive those moments, but is doing for the right thing to do? In the short run, absolutely. Action is needed quickly. In the long run, though, it may not be the best thing for the caretaker or the person on the spectrum.
The definition of independence is “freedom from outside control and support.” That is what we need to aim for, difficult though it may be. It all starts with a belief system. We must believe that:
To turn belief into reality, we need to have the correct system of action. We don’t “do for” the individual with autism, we teach and support, as necessary. We ask ourselves, “How can I work myself out of the activity?” and “What supports need to be in place to foster independence?”
The long-term goal is to have an empowered individual on the spectrum who knows what he needs and wants and has the ability (with supports, as necessary) to access those needs and desires. It is our “job,” if you will, to foster the “I can do it” attitude in the individual on the autism spectrum. This is independence.
Brenda Smith Myles, Ph.D., is the resident scholar – autism leadership and development consultant at the Ohio Center for Autism and Low Incidence (OCALI) in Columbus, Ohio. She has written numerous articles and books on Asperger Syndrome and autism includingAsperger Syndrome and Difficult Moments: Practical Solutions for Tantrums, Rage, and Meltdowns; Asperger Syndrome and Sensory Issues: Practical Solutions for Making Sense of the World; and Asperger Syndrome and Adolescence: Practical Solutions for School Success, the winner of the Autism Society of America’s outstanding literary work. Among other volunteer positions, she is a member of OAR’s Scientific Council.
Amy Bixler Coffin, M.S., is program director of the Autism Center at OCALI. She coordinates and provides regional and statewide professional development for districts, families, and organizations. Coffin has presented at state, national, and international conferences, contributed to several articles and book chapters, and authored a book on supporting individuals with autism spectrum disorder in the community.