It’s tricky to be a parent advocate in the autism community, especially if, like me, you are not autistic yourself. Autism is about autistic people, and that’s who should be leading autism advocacy efforts. But in the nearly two decades since my son was diagnosed, I’ve learned that I do have a role as an…
All children with special needs who succeed in school have at least one thing in common: parents who are passionate and effective advocates. As parents, we have the ability to advocate for our children by asking questions and speaking up for them. At times, this can be uncomfortable or even difficult to do; however, no…
Autism is a matter of perception, and what’s beautiful about that perception is its ability to change. Childhood My parents told me I was on cloud nine when they brought their second bundle of joy home – my baby brother. I have no recollection of this memory, nor the memory of him being diagnosed with…
In order to be an active participant in the transition planning process, your autistic teen needs to develop self-determination skills – the skills that enable individuals to speak up for what they want, what they’re interested in, and how they would like to accomplish it. Self-determination skills also allow individuals to have a strong understanding…
One summer vacation on Cape Cod, Mass., I made a mistake – although no one got hurt. My autistic son Ian and I were dressed in our swimsuits when we arrived at Race Point Beach to watch the sunset, a favorite vacation ritual. But nothing prepared us for the waters off Race Point that evening.…
For students in special education, “transition” refers to the time when a young adult leaves the K-12 education system and embarks upon adult life. Transition is a period marked by great potential – and significant uncertainty. It is crucial for autistic, young adults and their families to approach the transition process empowered by thoughtful planning.…
While many civilian families move to new cities, states, or countries, moving is a fact of life for military families. Moving can be a difficult transition for anyone, but it’s especially challenging for autistic children, as it entails significant and sudden environmental changes. Whether you’re a military family PCSing or a civilian family moving for…
I still remember the day before my son’s first Individualized Education Program (IEP) meeting. I was so nervous that I wrote down everything I wanted to say about my child in a notebook. Thankfully, the IEP team was enormously supportive, and he was placed in a well-fitted classroom, where he learned and played a lot.…
As many as 18.5% of children in the United States are obese. Evidence suggests the percentage may be even higher among autistic children due to factors including unusual dietary preferences, decreased exercise, and use of medication that is associated with weight gain, among others. The guidelines and support that exist for preventing and treating obesity…
Last month we celebrated OAR’s 20th birthday. At this time two decades ago, OAR was three weeks old, and Mike Maloney and I had driven to Baltimore to pitch OAR to Dr. Peter Gerhardt. After a few beers, Peter readily accepted the challenge to lead OAR’s Scientific Council, and Mike and I headed back to…
