Self-Advocacy Hub | Organization for Autism Research

Self-Advocacy Hub

Self-Advocacy

Self-advocacy (n.) is an individual’s ability to effectively communicate, convey, negotiate or assert his or her own interests, desires, needs, and rights.  It involves making informed decisions and taking responsibility for those decisions (VanReusen et al., 1994). Self-advocacy skills can be learned, and are crucial to develop in order for you to gain independence and make important decisions about your own life.

Featured Articles

These three students had a successful experience in college. You can too!

Three students, Capri, Haley, and Jamie, allowed us to interview them about their college experiences. Read their interviews to get a glimpse of how they self-advocate, manage academics, and navigate campus life.

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About Capri

Hometown: Batavia, Ohio
University/Program: Studying Media Arts and Animation at the Art Institute of Ohio-Cincinnati
Autism Symptoms: Echolalia, stimming, routine dependence

Read the Full Interview

Interview: CAPRI KOWSKY

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About Haley

Hometown: Boca Raton, Florida
University/Program: Law, University of Miami. J.D. expected May 2018.
B.A. in Criminology & Law and B.S. in Psychology from University of Florida in 2015
Autism Symptoms: Major challenges in college included learning to live independently, executive functioning skills, and stress management.

Read the Full Interview

Interview: HALEY MOSS

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About Jamie

Hometown: Webster, New York
University/Program: Sophomore studying Communications at Monroe Community College
Autism Symptoms: Stimming, verbal repetition

Read the Full Interview

Interview: JAMIE THOMAS MALLOY

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Want to go to college but don't know where to begin?

Here are some tips and checklists to help you best prepare for college.

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Tool: TRANSITION CHECKLIST

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What was college like for them?

Dena Gassner explains how her academic trajectory was so different from her son's, and why it's so important to be true to yourself.

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Article: Leading Authentic Lives

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When your chosen supporters are not your biological family

Tucker James Collins, a bright young man with Asperger Syndrome, shares his experience transferring colleges and getting the financial support he needed to gain true independence. Tucker graduated with honors from Drexel University.

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INTERVIEW: Supported Decision-Making

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Finding Resources

March 15, 2018

Self-advocate Kat Albee highlights ways in which those on the spectrum can be resourceful and hold...

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External Resources

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Supported Decision-Making Resource Library

The American Civil Liberties Union helps people with disabilities learn how to gain independence by informing them about their option to use supported decision-making as an alternative to depending on their guardians. Click the link for general information, videos, tools, sample agreements, and legal information.Go to Site »

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Autistic Self Advocacy Network

The Autistic Self Advocacy Network (ASAN) is a non-profit organization based in Washington D.C. and is managed by and for people on the spectrum. ASAN’s activities include public policy advocacy, the development of cultural activities, and leadership training for people with ASD.Go to Site »

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Stories of Supported Decision-Making 

The National Resource Center for Supported Decision-Making brings nationally recognized expertise and leadership on Supported Decision-Making, representing the interests of and receiving input from thousands of older adults and people with intellectual and developmental disabilities. NRC-SDM participates in legal cases, develops evidence-based outcome measures, and successfully advocates for changes in law, policy, and practice to increase self-determination. Read personal accounts about Supported Decision-Making and share your own story.Read More »

OAR is an excellent non-profit. For some families of individuals with autism, it is an essential first stop after they hear a diagnosis. The same goes for educators, law enforcement, and other professionals looking to learn about autism and foster acceptance within their community.

— Adult Self-Advocate

As the parent of an individual with autism, I have been impressed and helped by OAR’s commitment to disseminate evidence-based information through OAR’s Web site, resource guides, and monthly e-newsletter. I regularly recommend these resources to other caregivers, teachers, and therapists. It is wonderful to have an organization like OAR providing information we can trust!

—OAR Donor

I think what makes OAR special is the thought they put into every decision. Everything is personal, and every decision is made with the best interests of the people they’re serving: parents, professionals, military members, self-advocates, and families. They know that wading through research when you already have a lot on your plate isn’t easy, so they try to streamline the experience of parents and educators. They just… get it. Which is why their resources and fundraising just make sense and end up being so helpful. [They’re] the first place I’d send someone looking for autism resources, information, and fundraising opportunities.

—OAR Volunteer

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