Webinar: Autistic Adults and other Stakeholders Engage Together (AASET) for Suicide Prevention
Autistic Adults and other Stakeholders Engage Together (AASET) for Suicide Prevention
A presentation on suicide prevention interventions using autistic stakeholder engagement.
Presented by Stephen Shore, EdD, Teal Benevides, PhD, MS, OTR/L, Brenna Maddox, PhD, and Shari Jager-Hyman, PhD
Suicide is a leading cause of premature death for autistic individuals. The autism community has identified suicide prevention as a top priority, yet there is a large evidence gap about best practices to reduce suicide risk in autistic individuals. The presenters will discuss a recently funded Patient-Centered Outcomes Research Institute (PCORI) study comparing the effectiveness of two suicide prevention interventions for autistic adolescents and young adults. The presenters will highlight the value of stakeholder engagement and describe effective practices for meaningful and authentic inclusion of autistic individuals and their family members as research partners. They will describe how autistic co-researchers have contributed to study design decisions and study team considerations in instrumental ways. Strategies that could be used by other stakeholders to promote meaningful partnership will be highlighted.
About the Presenters
Stephen Shore, EdD, serves as Clinical Assistant Professor at the College of Education and Health Sciences at Adelphi University, focused primarily on education of and research on issues related to the autism spectrum to make fulfilling and productive lives the rule rather than the exception. Nonspeaking and diagnosed at age two and a half with “Atypical Development and strong autistic tendencies,” recommendations for institutionalization were rejected in favor of parent-based intensive early intervention and support. Dr. Shore is internationally known for presentations, consultations and writings on lifespan issues pertinent to education, relationships, employment, advocacy, and disclosure. A current board member of Autism Speaks, the Organization for Autism Research (OAR), American Occupational Therapy Foundation (AOTF), president emeritus of the Asperger/Autism Network, and advisory board member of the Autism Society, Dr. Shore also serves on the boards of numerous autism related organizations.
Teal Benevides, PhD, MS, OTR/L is an occupational therapist, researcher, wife, and mother. She serves as an Associate Professor in the Department of Occupational Therapy at Augusta University (AU), and maintains a joint appointment in the Institute of Public and Preventive Health, also at AU. Dr. Benevides is committed to fostering access to services and supports for individuals on the autism spectrum, and working to achieve better health outcomes and participation in meaningful life activities in alignment with priorities identified by autistic people. In her current work, Dr. Benevides aims to address the most pressing medical and mental health priorities faced by the autism community in collaboration with autistic partners. An extension of this work aims to understand and reduce racial/ethnic disparities in care for individuals on the autism spectrum.
Brenna Maddox, PhD, is an Assistant Professor at the University of North Carolina-Chapel Hill, in the Department of Psychiatry. As the implementation scientist for the TEACCH Autism Program, her work focuses on improving community services for people on the autism spectrum across the lifespan. She is particularly interested in engaging autistic individuals and other stakeholders in community-partnered research, preventing suicide and self-harm in people on the autism spectrum, and training and supporting community mental health clinicians to work with this population. Her research has been supported by the NIMH, PCORI, the Organization for Autism Research, the Foundation of Hope, and the FAR Fund. Dr. Maddox is also a clinical psychologist, a deputy editor for the journal Autism in Adulthood, and a co-chair of the American Association of Suicidology’s Autism and Suicide Committee.
Shari Jager-Hyman, PhD is a clinical psychologist and an Assistant Professor in the Center for the Prevention of Suicide, within the Department of Psychiatry at the University of Pennsylvania Perelman School of Medicine. Dr. Jager-Hyman is committed to improving access to and implementation of evidence-based suicide prevention practices across settings and populations. She is particularly interested in partnering with autistic individuals and other stakeholders to develop and implement tailored approaches to preventing suicide in individuals on the autism spectrum.